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Survey: Are you 18 years or older, have a rare condition, and live in the U.S.?

February 1, 2020 OregonDeanUncategorized

What does the current rare disease landscape look like for adults in the US?What are the challenges of living with a rare condition?  In a joint collaboration between the Rare Advocacy Movement (RAM) and THE PLANNING SHOP (TPS), an online survey has […]

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  • Reauthorize the Nation’s Newborn Screening Advisory Committee
  • Survey: Are you 18 years or older, have a rare condition, and live in the U.S.?

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Recent posts

  • Attention Rare Disease Week Advocates February 26, 2020
  • Reauthorize the Nation’s Newborn Screening Advisory Committee February 1, 2020
  • Survey: Are you 18 years or older, have a rare condition, and live in the U.S.? February 1, 2020

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