Survey: Are you 18 years or older, have a rare condition, and live in the U.S.?
What does the current rare disease landscape look like for adults in the US?What are the challenges of living with a rare condition? In a joint collaboration between the Rare Advocacy Movement (RAM) and THE PLANNING SHOP (TPS), an online survey has been created to uncover answers to these and other rare disease-related questions. The survey will generate data […]
Survey: Are you 18 years or older, have a rare condition, and live in the U.S.? Read More »