Attention Rare Disease Week Advocates

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We will be posting all this week’s asks in the coming days – so you can share them with, and engage, your community.

We need more than 1 day of rare disease policy – you can make that happen with no additional effort.

Please be sure to sign the Newborn Screening petition. We’ll use that contact information to send you details to share with your community about this week’s legislative asks.

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