Campaign - Rare Army

Attention Rare Disease Week Advocates

[popup_anything id=”468″] We will be posting all this week’s asks in the coming days – so you can share them with, and engage, your community. We need more than 1 day of rare disease policy – you can make that happen with no additional effort. Please be sure to sign the Newborn Screening petition. We’ll […]

Reauthorize the Nation’s Newborn Screening Advisory Committee

1 Comment / Campaign / OregonDean

[popup_anything id=”80″] Join us in calling on HHS Secretary Alex Azar to act immediately to restart the activities of the ACHDNC so it can continue its critically important work to improve newborn screening and save babies’ lives. Every year, more than 12,000 infants are born with health conditions that are not apparent at birth but

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